Longtime member, not active. Had a basenji with the same diagnosis back in 2004. He took a tremendous amount of bicarb each day, his Fanconi was being well managed, but he started having seizures at night. Our vet gave us something to stop the seizure that we'd administer rectally. We kept track of the number of seizures and they started becoming more frequent, to about twice a week, if I recall. The final seizure he had he went temporarily blind and howled and howled and we knew that was it was time. I just sat on the floor with him and cried. A couple months later we looked at photos we had taken of him right before and he looked very, very tired. Very much the hardest thing we had ever done was to let him go across the Bridge, but after looking at those photos, we had done the right thing. Our vet had told us that it was possible he would have a seizure and not come out of it, and we certainly didn't want that.
Monkey has Fanconi :(
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I normally post on the yorkie board similar to this one because Monkey is a 3 year old male yorkie, but no one there had any experience with this disease. I googled it and found that it was more common in Basenjis, so I hope its ok if I ask questions here. We are taking him to the specialist tomorrow, and I am unsure of what to expect. I am terrified that I am going to lose my baby. Does anyone have any success stories or advice (even though he is a yorkie)? Thanks.
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If it's discovered early enough-some B's do very well on the Fanconi protocol-don't give up yet. There are others here who have more experience with the syndrome than I have-they will be able to advise you better than I could. Good luck at the vet!
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If you're on Dogster, there is a support group specifically for Fanconi…
Living with Fanconi SyndromeGood luck! Our paws are crossed for you!!
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This is a hard illness, but its so much better with the fanconis support group.
Good luck. -
If you go to www.basenji.org, you can get information about Fanconi from Dr. Gonto that developed the protocol. Best to print it off and take it with you tomorrow… and good luck....
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Does he actually see patients or does he just do research? We are about an hour and a half from Savannah, so we could go to his office.
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Does he actually see patients or does he just do research? We are about an hour and a half from Savannah, so we could go to his office.
He doesn't see patients… but he will talk to you or your Vet any time about Fanconi and help develop the best course of treatment with the protocol....
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If you go to www.basenji.org, you can get information about Fanconi from Dr. Gonto that developed the protocol. Best to print it off and take it with you tomorrow… and good luck....
I believe you should print the information about Dr. Gonto's protocal and give the information to your vet. Your vet can follow Dr. Gonto's treatment program, i.e. lab tests to run; follow-up lab suggestions; therapeutic goals; management dosing guidelines, etc. Your vet should read all the information. There is also also correspondence info: address, email and phone/fax numbers to reach Dr. Gonto.
So sorry for you and your baby. Good luck with your visit tomorrow. I would go in armed with this information.
