I put the question out because I wanted a person who wasn't a breeder. Not to knock breeders at all. But it puts a different spin on it when someone walks into a breed expecting something and getting so much different because they didn't know and the breeder didn't explain to them what it was or dropped them when the issue came up. There are actually more people on this list who fall into the lines that I wanted. Someone who fell through the cracks and into a ball of wax so to speak. It doesn't matter where they come from! This is a universal afflication of the dogs.
Just because I come from Canada means nothing. I've accepted stuff from people written from around the world. I've done columns on dock diving with a Basenji, judging articles from around the world, breeding articles, ringworm articles, etc. If it's related, it's important. So thank you Patty, if you even someone from overseas can help, that is my big concern. Helping!. I did ask a breeder Pat, twice, to use her report and have been ignored both times. I know she got and read the e-mail, so saying she didn't get it doesn't wash. We've all had some very painful experiences with things we didn't want to deal with or talk about after, but we do it because it might help one other person understand it. eg cancer, thyroid issues, hit by a car, etc. This is no different. I have a dog who had HOD, that I deal with everyday with special diet, now pills and x-rays and blood tests. This is something I would never, ever want a person to deal with. Be it a breeder or a pet person. It's painful dealing with it everyday wondering if today will be a good day or a bad day.
While neither you nor I have been through it Pat, others have. How would you feel to try to figure out why your dog is suddenly peeing on the floor, not knowing what to do, losing weight, with the vet not knowing what to do either? You and I have an advantage of being well versed in the Breed, but I'm sure we would miss things as well until after the fact. After they were diagnosed the little light would come on and we would say, 'Oh, that's why…..' I'm just very frustrated that I am trying to find someone to write something so important, in the light of a personal experience, to help others, including myself, understand what may or may not happen. And then it goes back to the same old thing. 'Oh, I don't want to write about it because then they know I have a Fanconi dog.' I'm sorry to rant, but it's a vicious circle. We want to educate. We, who have never had a Fanconi dog want to understand, but can't because we've never experienced it, but when I ask, everyone clams up! I'm not asking the person to print their name. It can be put in anonymous. I just thought it was important enough to share, not just with one or two people, but for everyone who is interested, to understand what you could go through with this affliction and why we are trying to get away from it. I'm not sure I could appreciate totally what someone who has a Fanconi dog goes through, and I would think others are also wondering what is the big deal? Yes, we know it's bad. But is it worse than a thyroid issue? A seizure issue? A cancer scare? and why? Is it because of the prognosis? The amount of pills you need to give? What type of time frame? WHAT? I think many of us have these questions and really, I don't know, unless I went through it myself, because so little is actually written about the whole process from a personal standpoint, what I would or could expect. I really am sorry, I'm just so frustrated that there is so much talk around it, but no one wants to really address it. If it was something good, like the DNA linkage test, you hear so much about it and how it is great progress!
I have put it out there to others whom I know have had Fanconi dogs and I always get the same response. 'Oh, but my dog didn't have it.. it was....' and again, here we go. Sorry, I'm just really frustrated because I have been after this for about a year now and have made absolutely no progress at all.
I'll withdraw the question and just continue to hope we get some decent info from a brave soul who isn't afraid to say, "This is what happened to me, don't let it happen to you."