Just wanted to update everyone on Tayda. She had her bloodwork done last week and it seems her HCO3 and Potassiums are a touch on the high side, so we are DECREASING her supplementation. That's a first. She has been the model Fanconi patient for the 5 years since she was diagnosed, all of her numbers were always spot on. Her BUN and Creatinine are still elevated (but still in the normal range) so I'm trying to decrease her protein level in her food even more. She's already on a prescription renal diet, so it's going to be tough. She's very skinny - only 12 lbs now.
Overall, her bloodwork and urinanalysis don't show anything alarming. It's easy peasy to give her LESS pills, obviously. Dr. Gonto seems pretty sure that she is experiencing some muscle cramping and that could be why her tail is down and she just seems less mobile than before. We are adding some more amino fuel to her supplementation so hopefully that helps.
It's just hard. She pees in the house pretty regularly now (and I'm sure it's not UTI related). And even when she goes outside, I have to carry her out. Maybe it's because it's cold now here in RI? Lenny won't go outside either.
I don't know. None of these things seems like reason enough to consider her quality of life compromised….. mostly it's compromising MY quality of life - having to clean up pee so often(sometimes up to 3 times an evening) but I just don't know what to do about it. I feel like i've tried everything.