I'm the "mommy" of a B girl with Fanconi, also. I really encourage you to join the fanconi yahoo group. It's a GREAT resource! I have learned so much just from reading the posts of people with current issues and the experienced fanconi dog owners' replies. Also, they keep a list on the website of vets that are known to be knowledgable about the disease and are willing to communicate with Dr. Gonto (who wrote the protocol) directly when needed - because not all are. The list is by state and you can find it on the site under "files".
Good luck with everything and keep us posted!